Considerations that led to the survey
Are you by chance already a Parkinson’s patient and therefore part of one of the fastest growing patient communities in Europe? We now have more than a million increasingly younger diagnosed patients and several million who are directly affected as partners, relatives, friends or employers. We believe it is time to take our fate into our own hands again, so that together we can end the element that unites us, the livelihood of our community – to eliminate Parkinson’s. Only if we patients become the driving force in the fight against this insidious disease and fight with all our (remaining) strength – do we have a chance to experience that Parkinson’s is curable. There are some indications that no one else has an interest in defeating this disease (see below “Two quotes”). The availability of IQ and € determines the success of the mission and its duration. Both condition each other and attract each other. By the way, according to a recent scientific study (Smarter then the average Björn), Parkinson’s patients are on average above average intelligent. In addition, they or society can afford to consume medication for an average of more than € 1,000 – month after month, often for decades. We should use these circumstances to put an end to our suffering.
Two quotes from emails from contributors:
1. “Nobody wants to cure Parkinson’s … The manufacturing industry has, to put it again very clearly, ZERO interest in our desire and desire to overcome Parkinson’s. They live well from it and with the fact that it is not curable! And the service provider right down to the meticulously organized specialist clinics, nursing services, specialist medical practices, etc. are only our friends as long as we dump money there without any alternative. Nothing is more scary economically than a cured patient! … “
2. One of the scientists who support this project wrote recently: “It will certainly not be easy to get large-scale public funding for new Parkinson’s research. Health research as a whole has far too little value in the political priorities for this. So the EU budget under Pillar 2 of the Horizon Europe research program is around 7? Billions in total less than that of all other areas (climate, energy, food … That is particularly astonishing when you consider that the EU spends around 4.5 billion per day on health costs. The concept of saving costs through research obviously still has European politics not convinced. * I see the best chance in a patient-driven project, similar to the Hereditary Disease Foundation, which has definitely accelerated the identification of the HD gene. Sergej Brin / Google, for example, could theoretically contribute more to Parkinson’s research than that in the next few years EU will spend on health research as a whole in its framework program.”